News

Advancing RAS/RASopathies Therapies Headlines

Advancing RAS/RASopathies Therapies

❓ What have we been working towards? ♥ Read the RAS Dialogue Blog from Marielle…

Beth StronachSeptember 3, 2026

Noonan Syndrome Foundation Family Conference Headlines

Noonan Syndrome Foundation Family Conference

Noonan Syndrome Foundation Family Conference July 29, 2026 Kalahari Resort Round Rock, Texas Find out…

Beth StronachJuly 4, 2026

2026 Q2 RASNet Newsletter News in the USA

2026 Q2 RASNet Newsletter

Q2 RASNet Newsletter Check out the latest news, events, and research highlights for the RASopathies…

Beth StronachJune 16, 2026

Symposium Proceedings Published Headlines

Symposium Proceedings Published

ABSTRACT The RASopathies are a group of congenital disorders with overlapping clinical manifestations that are…

Beth StronachMarch 17, 2026

Symposium Presentations Available Headlines

Symposium Presentations Available

Symposium videos are now available. Visit our YouTube Channel

Beth StronachJanuary 21, 2026

RASopathies Network 2025 Year in Review News in the USA

RASopathies Network 2025 Year in Review

Watch a short video "2025 RASNet Year in Review"

Beth StronachJanuary 3, 2026

Visit our Research Studies and Trials Page News in the USA

Visit our Research Studies and Trials Page

We often list new studies that are relevant to individuals with a RASopathy syndrome. See…

Beth StronachSeptember 16, 2025

9th RASopathies Symposium: That’s a wrap News in the USA

9th RASopathies Symposium: That’s a wrap

We had 141 in-person attendees and 16 virtual attendees from a total of 13 countries!…

Beth StronachAugust 24, 2025

NF Conference attendance in D.C. News in the USA

NF Conference attendance in D.C.

Beth Stronach and Lisa Schoyer attended the NF Conference in Washington D.C. on June 21-24,…

Beth StronachJuly 1, 2025

Five weeks until the symposium Headlines

Five weeks until the symposium

We finally received a Notice of Grant Award for partial funding of the symposium from…

Beth StronachJune 18, 2025