RASopathies Network


A 501.c.3 organization; Our mission is to advance research of the by bringing together families, clinicians & scientists.

Altadena CA
Joined October 2014

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  1. Feb 28

    Lisa Schill & Elisabeth Parker representing the at today's Legislative Conference with

  2. Feb 28

    Vice President Lisa Schill presenting at the Legislative Conference today and bringing light to .

  3. Feb 28

    Looking forward to hearing Lisa Schill of speak this afternoon at the Rare Disease Week Legislative Conference!

  4. Feb 28
  5. Feb 28

    The RASopathies and our very own Max represented yesterday at in the Beyond the Diagnosis exhibit!

  6. Feb 26

    Follow us this week as we attend Rare Disease Week on Capitol Hill!:

  7. Feb 21

    Our friends at present the 2017 Rare Disease Summer Family Camp :

  8. Feb 16

    We would like to give a warm welcome to our new board member, Elisabeth Parker. Elisabeth will be handling our...

  9. Feb 10

    Please make a donation to support RASopathies Research! 100% of your donation will go towards a RASopathies...

  10. Feb 10

    Please donate to a RASopathies Research grant to help advance research of the RASopathies!! Your donation will be...

  11. Feb 10

    Four ways you can participate in Rare Disease Week on Capitol Hill and help advance RASopathies research!

  12. Feb 6
  13. Feb 2

    Please join the RASOPATHIES RIDERS team to raise money for the RASopathies!! May 20, 2017 100% of funds go...

  14. RASopathies Network followed and
    • @holewallcamp

      The Hole in the Wall Gang Camp provides “a different kind of healing” to seriously ill children and their families throughout the Northeast, free of charge.

    • @ScienceMarchDC

      The March for Science champions robustly funded and publicly communicated science as a pillar of human freedom and prosperity.…

  15. Jan 22

    Check out our 2016 year in Review! We are working hard to advance RASopathies research.

  16. Jan 22

    Check out our 2016 Year in Review! We are working hard to advance RASopathies research.

  17. Jan 16
  18. Jan 11

    The curious connection between autism and cancer | Spectrum

  19. Jan 6

    FREE registration for Day at on February 27th is now available!

  20. Jan 3

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