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Lisa Schill & Elisabeth Parker representing the
#RASopathies at today's#rareDC2017 Legislative Conference with@RareAdvocatespic.twitter.com/7ZauzGV0H9 -
Vice President Lisa Schill presenting at the
#RareDC2017 Legislative Conference today and bringing light to#RASopathies.pic.twitter.com/uxg5vHwGpL -
RASopathies Network Retweeted
Looking forward to hearing Lisa Schill of
@RASopathiesnet speak this afternoon at the Rare Disease Week Legislative Conference!#RareDC2017 -
RASopathies Network Retweeted
In honor of
#RareDiseaseDay here is the story of an incredible advocate, Max. http://tinyurl.com/htatk68@BioNJ_Org@TODAYshow@RASopathiesnetpic.twitter.com/5ywqNxb6lz -
The RASopathies and our very own Max represented yesterday at
@NIH in the Beyond the Diagnosis exhibit!#RDDNIHpic.twitter.com/0em7rdkySJ -
Follow us this week as we attend Rare Disease Week on Capitol Hill!:
#rasopathies#raredisease#WRDD2017#raredc2017#careaboutrare#rarepic.twitter.com/RmabC7UkPP -
Our friends at
@RareDiseases present the 2017 Rare Disease Summer Family Camp@holewallcamp:https://rarediseases.org/event/2017-rare-disease-summer-family-camp … -
We would like to give a warm welcome to our new board member, Elisabeth Parker. Elisabeth will be handling our...http://fb.me/2CcRI9bkN
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Please make a donation to support RASopathies Research! 100% of your donation will go towards a RASopathies...http://fb.me/3diIPPNDy
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Please donate to a RASopathies Research grant to help advance research of the RASopathies!! Your donation will be... http://fb.me/6tbKKup2P
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Four ways you can participate in Rare Disease Week on Capitol Hill and help advance RASopathies research! http://fb.me/8CNNd5NpD
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RASopathies Network Retweeted
gain-of-function: what's in a name?New insights from our work on
@Rasopathiesnet@NatureGenet@GeneticsGSA@the_Node http://www.nature.com/ng/journal/vaop/ncurrent/full/ng.3780.html … -
Please join the RASOPATHIES RIDERS team to raise money for the RASopathies!! May 20, 2017 100% of funds go... http://fb.me/1PNSBHgR3
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RASopathies Network followed Hole in the Wall and March for Science
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@holewallcamp
The Hole in the Wall Gang Camp provides “a different kind of healing” to seriously ill children and their families throughout the Northeast, free of charge.
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@ScienceMarchDC
The March for Science champions robustly funded and publicly communicated science as a pillar of human freedom and prosperity.…
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Check out our 2016 year in Review! We are working hard to advance RASopathies research. http://eepurl.com/cw3n_r
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Check out our 2016 Year in Review! We are working hard to advance RASopathies research. http://eepurl.com/cw3n_r
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KIDS TAKE OVER TOY STORE (Day 1742)https://www.youtube.com/watch?v=Bm-fgA8nnvc&feature=share …
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The curious connection between autism and cancer | Spectrumhttp://fb.me/5t2TkaLSH
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RASopathies Network Retweeted
FREE registration for
#RareDisease Day at@NIH on February 27th is now available! http://ow.ly/JkCU307iPZD#RareDC2017#RDDNIH -
RASopathies Network Retweeted
Our work to rank
@RASopathiesnet &#cancer mutations w/#zebrafish &#Drosophila in@PNASNews is out!@ZebrafishRock http://www.pnas.org/content/early/2017/01/01/1615651114.full …
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