Headlines

BioMarin has made the decision to discontinue development of VOXZOGO® (vosoritide) for children with Noonan…

Restoring the brake: Using molecular glues to fix a broken CRAF off-switch in Noonan Syndrome…

❓ What have we been working towards? ♥ Read the RAS Dialogue Blog from Marielle…

Noonan Syndrome Foundation Family Conference July 29, 2026 Kalahari Resort Round Rock, Texas Find out…

ABSTRACT The RASopathies are a group of congenital disorders with overlapping clinical manifestations that are…

Symposium videos are now available. Visit our YouTube Channel

We finally received a Notice of Grant Award for partial funding of the symposium from…

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