Webinars Library

Webinars Library

Webinars hosted by RASopathies Network

We welcome webinar topics ideas!
Please email us at info@rasopathiesnet.org


Link to Webinar: An Update on the Clinical Trial Using Vosoritide for Growth in Noonan  Syndrome (and other RASopathies), by Andrew Dauber, MD, MMSc, Chief of Endocrinology, Children’s National Hospital, Washington, DC.

If you have questions about joining the Study, contact adauber@childrensnational.org 



Link to Webinar: Exploring MEK inhibitors: What are they and what are the common side effects in pediatric patients, by Tara McKeown, MN NP‐Pediatrics, Nurse Practitioner, Neuro‐Oncology, The Hospital for Sick Children, Canada, introduced by Andrea Cote





Link to Webinar: Feeding Problems in RASopathies by Dagmar Tiemens, MSc, MScEd, with Jos Draaisma, MD, PhD, and comments from Katie Palmer, family advocate for NS






Link to Webinar: Bleeding issues in RASopathies with Drs. Pawar and Briggs. June 19, 2022








Link to Webinar: What is NCI’s RASopathies Natural History Study? with Dr. Gina Ney MD, PhD, February 27, 2022








Link to Social Behavior in RASopathies: Are We Missing Areas of Strength?, by Alli Foy, PhD, October 24, 2021






Link to SECOND WEBINAR with Drs. Gelb, Roberts and Stevenson on the COVID19 vaccine as it relates to RASopathies, August 15, 2021





Link to Webinar with Dr. Itkin on lymphedema in Noonan syndrome which may inform other RASopathies as well, April 25, 2021






Link to Webinar with Drs. Gelb, Green, Gripp and Stevenson on the COVID19 vaccine as it relates to the RASopathies, January 24, 2021





Link to Webinar with Dr. Dauber about his growth hormone study, December 2, 2020






Link to Webinar with Dr. Green about Strategies for Emotional Health during COVID19, March 23, 2020


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Webinars by partners related to RASopathies:

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