Webinars Library

Webinars Library

Webinars hosted by RASopathies Network

We welcome webinar topics ideas!
Please email us at info@rasopathiesnet.org

 

 

Link to Webinar: Exploring MEK inhibitors: What are they and what are the common side effects in pediatric patients, by Tara McKeown, MN NP‐Pediatrics, Nurse Practitioner, Neuro‐Oncology, The Hospital for Sick Children, Canada, introduced by Andrea Cote

 

 

 

 

 

Link to Webinar: Feeding Problems in RASopathies by Dagmar Tiemens, MSc, MScEd, with Jos Draaisma, MD, PhD, and comments from Katie Palmer, family advocate for NS

 

 

 

 

 

Link to Webinar: Bleeding issues in RASopathies with Drs. Pawar and Briggs. June 19, 2022

 

 

 

 

 

 

 

Link to Webinar: What is NCI’s RASopathies Natural History Study? with Dr. Gina Ney MD, PhD, February 27, 2022

 

 

 

 

 

 

 

Link to Social Behavior in RASopathies: Are We Missing Areas of Strength?, by Alli Foy, PhD, October 24, 2021

 

 

 

 

 

Link to SECOND WEBINAR with Drs. Gelb, Roberts and Stevenson on the COVID19 vaccine as it relates to RASopathies, August 15, 2021

 

 

 

 

Link to Webinar with Dr. Itkin on lymphedema in Noonan syndrome which may inform other RASopathies as well, April 25, 2021

 

 

 

 

 

Link to Webinar with Drs. Gelb, Green, Gripp and Stevenson on the COVID19 vaccine as it relates to the RASopathies, January 24, 2021

 

 

 

 

Link to Webinar with Dr. Dauber about his growth hormone study, December 2, 2020

 

 

 

 

 

Link to Webinar with Dr. Green about Strategies for Emotional Health during COVID19, March 23, 2020

 

 

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