Please join us!
The RASopathies Network is building a contact registry to help advance RASopathies research. We will never share your personal information. We use the information to let you know when there is a research opportunity that might be a good fit for you or your family.
If you haven’t joined our registry and would like to, please email LSchill@rasopathiesnet.org with the following information. Thank you for helping advance research!
RASNet Contact Registry questions
Affected Person‘s Name:
Gene mutation if you know it:
City, State, Zipcode:
If your loved one has died, please share date and cause, if you know it.
1st Caregiver‘s name:
2nd Caregiver‘s name:
Name of Friend/Family who know how to reach you if you change your contact information: