Patient Contact Registry

Please join us!

The RASopathies Network is building a contact registry to help advance RASopathies research. We will never share your personal information. We use the information to let you know when there is a research opportunity that might be a good fit for you or your family.

If you haven’t joined our registry and would like to, please email LSchill@rasopathiesnet.org with the following information. Thank you for helping advance research!

RASNet Contact Registry questions

Affected Person‘s Name:
Diagnosis:
Gene mutation if you know it:
Biological sex:
Year born:
Street address:
City, State, Zipcode:
Country:
Cellphone:

If your loved one has died, please share date and cause, if you know it.
Year died:
Cause:

1st Caregiver‘s name:
Relationship:
Email:
Cellphone:

2nd Caregiver‘s name:
Relationship:
Email:
Cellphone:

And…

Name of Friend/Family who know how to reach you if you change your contact information:
Relationship:
Email:
Cellphone: