Family Forums

2016

Noonan Syndrome Association (UK)
Saturday, 23rd April, 2016
The Hilton Birmingham Metropole Hotel
National Exhibition Centre
Birmingham B40 1PP

Speakers:
Ian Legg, Noonan Syndrome Association Chair
Judith Van De Meerakker, geneticist with Noonan syndrome
Professor Michael Patton with an update on the RASopathies
Professor Bronwyn Kerr
Professor Sahar Mansour
Professor Jonathan Green
Dr Juan Pablo Kaski
Dr Vin Diwakar
Dr Shruti Garg
Dr Pia Ostergaard
Sue Miller, Family Partnership Co-ordinator, Staffordshire SEND Family Partnership

Click here for Programme
Click here for Registration Form

2015

Noonan Syndrome Foundation Mini-Conference
February 21, 2015 2:00-5:00 pm
Hilton Long Beach Hotel & Executive Meeting Center
562-983-3400
701 W. Ocean Blvd.
Long Beach, California 90831
United States

Speech and Language Therapy – Katie Saul, MA, CCC-SLP
How Research Works – Allan Reiss, MD, Stanford University
Behaviors – Tamar Green, MD, Stanford University

Contact Information: Phone: 1 (866) 875-8928
Contact by email – here

 

CFC International Family Conference
(overlapping with the 4th International RASopathies Symposium)
July 15 – July 19, 2015
Doubletree at Seattle Airport (SeaTac)

More information here: http://www.cfcsyndrome.org/conference.shtml

 

Costello Syndrome Family Network Family Forum
(overlapping with the 4th International RASopathies Symposium)
July 14 – July 19, 2015
Doubletree at Seattle Airport (SeaTac)

More information here: http://www.costellosyndromeusa.org/

 

UK CFC/Costello Syndrome Conference 
28-29 October, 2015
Hilton Hotel at Manchester Airport, Manchester, UK

More information here: http://costellokids.com/content/uk-european-2015-conference