How You Can Help

 Here are 5 WAYS you can help us:

1.  Donate to RASopathies Research 

The University of Pennsylvania’s Orphan Disease Center is hosting their 8th annual Million Dollar Bike Ride (MDBR), and RASopathies Network has again been invited to participate and raise funds for international RASopathies research. If we raise $20,000, the University of Pennsylvania will match it!

The 2021 Million Dollar Bike Ride will be VIRTUAL this year, on June 12, 2021.  If you like to bike, or know of people who do, please consider signing up to support the RASopathies Network Riders! Please choose the RASopathies team when you register. For more information or questions, contact us at

Don’t bike? No problem!

Ways to Donate

We match donations 1:1 up to $10,000, and once we reach $20,000 Penn matches donations 1:1 up to $30,000.

You can donate to RASopathiesNet for our 1:1 match up to $10,000 – which will then be sent to Penn for their 1:1 match up to $50,000 which increases the value of your donation 4x, or you can donate through any of Penn’s webpages (RASopathies Network Riders, a friend’s or your own MDBR social fundraising page) for Penn’s 1:1 match.

  • Set up a giving page to raise funds for international RASopathies research. Please contact Lisa Schill at for more information on how to set up a giving page
  • Donate to RASopathiesNet (see Option 2 below) for your donation-x-4.  Please be sure to write “MDBR” in the memo
  • Donate to Penn MDBR’s RASopathies Network Riders’s donate page – click here

Questions? Contact Lisa Schill at or (520) 229-7067.

A list of previous research grant winners can be found here.

2.  …or support RASopathies Network with our mission to bring together families, clinicians and researchers

RASopathies Network
244 Taos Road
Altadena  CA  91001-3953

3.  …and SHOP via AmazonSmile

Rasopathies Network USA

4. Spread the word

5. Suggestion box

Contact us if you have an idea to share!