Million Dollar Bike Ride

The 2020 Final Count…

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Congratulations, Gregor ANDELFINGER, MD PhD, for winning the 2019 MDBR RASopathies Research Grant studying the use of MEK inhibitors for heart problems in RASopathies!

LET’S RAISE GRANT MONEY FOR ANOTHER RESEARCH PROJECT

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~ Penn Medicine’s 2020 Million Dollar Bike Ride Goes Virtual ~
Document your miles until Saturday, June 13, 2020

2019 MDBR RASopathies Riders and Volunteers
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Even though we won’t be seeing you in June for a 13-, 34-, or 72-mile ride, we ask and encourage you to ride on your own (safely socially-distanced from your cycling buddy or on your own stationary bike), between now and June 13th, and document your progress!

We are looking into various cycling apps that will allow for progress tracking and sharing, allowing you to cycle at your leisure over the course of the next few weeks (or all at once!) Regardless of whether or not you choose to use the app that we suggest (or one of your own) we hope you will participate leading up to and including June 13th to show your commitment and spirit for the MDBR.

Whether you’re on your stationary bike or on the road, we will have special hashtags for sharing on social media, and ask that you post your personal or team cycling updates throughout the next several weeks up to and including June 13th.  We will be sharing, “liking” and re-posting your updates on our social media channels and website, as well.

Just register like you’re participating in Philadelphia, email LSchill@rasopathiesnet.org that you’ll be participating virtually, and then take a bike ride or walk or run locally.

Click here to register, and as you go through the registration pages, choose RASopathies Network 

 

Ways to Donate

We match donations 1:1 up to $20,000, and Penn matches donations 1:1 up to $50,000.

You can donate to RASopathiesNet for our 1:1 match up to $20,000 – which will then be sent to Penn for their 1:1 match up to $50,000 which increases the value of your donation 4x, or you can donate through any of Penn’s webpages (RASopathies Network Riders, a friend’s or your own MDBR social fundraising page) for Penn’s 1:1 match.

  • Click here [and go to option 2] to donate to RASopathiesNet for your donation-x-4.  Please be sure to write “MDBR” in the memo.
  • Click here to donate to Penn MDBR’s RASopathies Network Riders’s donate page
  • If you want to pay by check to Penn MDBR, click here.
  • Click here to set up your own MDBR social fundraising page

If you set up a Penn MDBR fundraising page in the past, please reset your “funds raised” back to $0!  More information can be found on the Penn MDBR FAQ page here: http://www.milliondollarbikeride.org/fundraising-1.

Questions? Contact Lisa Schill at LSchill@rasopathiesnet.org or (520) 229-7067.

 

Click here for parents’ answers to What do you hope RASopathies research will do for you?

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Congratulations, BRUCE GELB, MD, for winning the 2018 MDBR RASopathies Research Grant!

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The 2018 Final Count…

On May 21, 2018

***Thank you 2018 Riders and Volunteers!***

 

Thank you Water Station Volunteers!

 

Thank you Ride for Shane Team!

 

Thank you PJ for organizing all the riders!

 

Between their butts and the green ribbon is the RASopathiesNet logo!

RASopathiesNet’s Boardmembers Beth Stronach (Secretary) and Lisa Schill (Vice President)

 

Thank You Everyone!

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MILLION DOLLAR BIKE RIDE FUNDRAISER
for RASopathies Research


Thank you 2017 RASopathies MBDR Team!

 

 

Past RASopathies Grant Winners

2019: Gregor Andelfinger, MD PhD, CHU Sainte Justine Research Center, University of Montréal, $59,220
MEK inhibition for RASopathy associated hypertrophic cardiomyopathy

2018: Bruce Gelb, MD, Icahn School of Medicine at Mt. Sinai, NY, $74,830
Advancing A Novel Therapeutic Lead for RASopathies

2017: Kartik Venkatachalam, PhD, McGovern Medical School, University of Texas Science Center at Houston, $47,189
Targeting Endolysosomal Proteins to Treat RASopathies 

2016: Philip Stork, MD, Oregon Health Sciences University, $44,000
Are Raf dimers targets for therapeutic intervention in RASopathies?

2015: Giuseppe Zampino, Università Cattolica Sacro Cuore, $53,000
Pain in RASopathies: new investigative techniques and treatments

2014: Maria Kontaridis, PhD, Beth Israel Deaconess Medical Center/Harvard Medical School, $65,000
Pilot study to delineate the cause of gastrointestinal abnormalities in RASopathy disorders using human inducible pluripotent stem cells (iPSCs)

Save the Date!

…for the 7th International RASopathies Symposium in 2021 –  Denver, Colorado.  More information soon, or email info@rasopathiesnet.org