Million Dollar Bike Ride

2021 MDBR

The University of Pennsylvania’s Orphan Disease Center is hosting their annual Million Dollar Bike Ride (MDBR), and they have again invited RASopathies Network to raise funds for international RASopathies research!

The MDBR will be VIRTUAL this year, on June 12, 2021.  If you like to bike, or know of people who do, please consider signing up to support the RASopathies Network Riders! – https://www.milliondollarbikeride.org/

      • You can sign up to ride for a $45 registration (100% of the fee goes toward RASopathies research)
      • You can sign up to ride and fundraise for a $25 registration + raise $250

Please choose the RASopathies team when you register

For more information or questions, contact us at info@rasopathiesnet.org.

Don’t bike? No problem!

Ways to Donate

You can donate to RASopathiesNet for our 1:1 match up to $10,000 – which will then be sent to Penn for their 1:1 match which increases the value of your donation 4x, or you can donate through any of Penn’s webpages (RASopathies Network Riders, a friend’s or your own MDBR social fundraising page) for Penn’s 1:1 match.

  • Donate to RASopathiesNet for your donation-X-4.  Click here [and go to option 2].  Please write “MDBR” in the memo
    OR
  • Donate to Penn MDBR’s RASopathies Network Riders’s donate page – click here
    OR
  • Set up a giving page at the MDBR site to raise funds for international RASopathies research. Please contact Lisa Schill at LSchill@rasopathiesnet.org for more information on how to set up a giving page

Questions? Contact Lisa Schill at LSchill@rasopathiesnet.org.

Click here for parents’ answers to What do you hope RASopathies research will do for you?

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Congratulations, Vanessa Fear, PhD, The University of Western Australia, for winning the 2020 MDBR RASopathies Research Grant to study “Understanding RASopathies to better inform diagnosis and treatment”

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The 2020 Final Count…

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Congratulations, Gregor ANDELFINGER, MD PhD, for winning the 2019 MDBR RASopathies Research Grant studying the use of MEK inhibitors for heart problems in RASopathies!

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2019 MDBR RASopathies Riders and Volunteers

 

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Congratulations, BRUCE GELB, MD, for winning the 2018 MDBR RASopathies Research Grant!

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The 2018 Final Count…

On May 21, 2018

***Thank you 2018 Riders and Volunteers!***

 

Thank you Water Station Volunteers!

 

Thank you Ride for Shane Team!

 

Thank you PJ for organizing all the riders!

 

Between their butts and the green ribbon is the RASopathiesNet logo!

RASopathiesNet’s Boardmembers Beth Stronach (Secretary) and Lisa Schill (Vice President)

 

Thank You Everyone!

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MILLION DOLLAR BIKE RIDE FUNDRAISER
for RASopathies Research


Thank you 2017 RASopathies MBDR Team!

 

 

Past RASopathies Grant Winners

2020: Vanessa Fear, PhD, The University of Western Australia, Understanding RASopathies to better inform diagnosis and treatment, $69,885

2019: Gregor Andelfinger, MD PhD, CHU Sainte Justine Research Center, University of Montréal, $59,220
MEK inhibition for RASopathy associated hypertrophic cardiomyopathy

2018: Bruce Gelb, MD, Icahn School of Medicine at Mt. Sinai, NY, $74,830
Advancing A Novel Therapeutic Lead for RASopathies

2017: Kartik Venkatachalam, PhD, McGovern Medical School, University of Texas Science Center at Houston, $47,189
Targeting Endolysosomal Proteins to Treat RASopathies 

2016: Philip Stork, MD, Oregon Health Sciences University, $44,000
Are Raf dimers targets for therapeutic intervention in RASopathies?

2015: Giuseppe Zampino, Università Cattolica Sacro Cuore, $53,000
Pain in RASopathies: new investigative techniques and treatments

2014: Maria Kontaridis, PhD, Beth Israel Deaconess Medical Center/Harvard Medical School, $65,000
Pilot study to delineate the cause of gastrointestinal abnormalities in RASopathy disorders using human inducible pluripotent stem cells (iPSCs)

Save the Date!

…for the 7th International RASopathies Symposium in 2021 –  We’re going virtual!  More info here.