2023 Symposium Speakers & Moderators

8th International RASopathies Symposium:
Expanding Research and Care Practice
through Global Collaboration and Advocacy

July 21-23, 2023
In-Person and Virtual Meeting
Denver Marriott Tech Center, Denver, Colorado

Speakers & Moderators

Gregor Andelfinger, MD, PhD, Centre de Recherche du CHU-Sainte-Justine, Montréal, Canada – 2023 Symposium Chair

Annette Bakker, PhD, Chlidren’s Tumor Foundation, New York, NY

Anton Bennett, PhD, Yale School of Medicine, New Haven, CT – 2023 Symposium Chair

Sarah Borrie, PhD, KU Leuven, Belgium

Benjamin Briggs, MD, PhD, Uniformed Services University, Naval Medical Center, San Diego, CA

Emma Burkitt-Wright, MBChB, PhD, MRCP, Manchester Centre for Genomic Medicine, UK

Ion C. Cirstea, PhD, Ulm University, Germany

Vanessa Fear, BSc (Hons), PhD, Telethon Kids Institute, Nedlands, Western Australia

Bruce Gelb, MD, Icahn School of Medicine at Mt. Sinai, New York, New York

Tamar Green, MD, Stanford University, CA

Karen Gripp, MD, Nemours Children’s Health, Wilmington, Delaware

Fabrice Jaffré, PhD, Will Cornell Medical College Ithaca, New York

Bonnie Klein-Tasman, PhD, University of Wisconsin – Milwaukee

Maria Kontaridis, MD, PhD, Masonic Medical Research Institute, Utica, New York

Bruce Korf, MD, PhD, University of Alabama, Birmingham

Paul Kruszka, MD, MPH, GeneDx, Stamford, Connecticut

Chiara Leoni, MD, PhD, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy

Pilar Magoulas, MS, CGC, Baylor College of Medicine, Houston, Texas

Anne Marie Messier, Parent Advocate, Montreal, Quebec, Canada

Laure Messier, Self Advocate, Montreal, Quebec, Canada

Christopher Moertel, MD, University of Minnesota, Minneapolis

Gina Ney, MD, PhD, National Cancer Institute – Shady Grove, Rockville, Maryland

Rene Pierpont, PhD, LP, University of Minnesota, Minneapolis – 2023 Symposium Chair

Carlos Prada, MD, Ann & Robert H. Lurie Children’s Hospital of Chicago, Illinois

Katherine A. Rauen, MD, PhD, University of California at Davis

Renée Roelofs, PhD, Radboud University, Nijmegen, Netherlands

Rodrigue Rossignol, PhD, University of Bordeaux, France

Christine Sevilla, Parent Advocate, Chicago, Illinois

Gigi Sevilla, Self Advocate, Chicago, Illinois

Suma Shankar, MD, PhD, University of California at Davis

Ryan D. Sheedy, Dad, Caregiver & Founder, Centerton, Arkansas

Keir Shiels, MA, MB, BChir, MRCPCH, Great Ormond Street Hospital, London, England

David A. Stevenson, MD, Stanford University, California

Elliot Stieglitz, MD, UCSF Hellen Diller Family Comprehensive Cancer Center, San Francisco, CA

Daochun Sun, PhD, Medical College of Wisconsin, Milwaukee

Dagmar Tiemens, PhD Candidate, Parent Advocate, Radboud Univesity Medical Center, Nijmegen, The Netherlands; Dutch Noonan Syndrome Foundation, The Netherlands

Forest White, PhD, MIT Biological Engineering, Cambridge, Massachusetts

Ellen Wingbermühle, PhD, Vincent van Gogh Institute fo Psychiatry, Venray, Netherlands

Cordula Wolf, MD, German Heart Center Munich, Technical university Munich, Germany

Martin Zenker, MD, Otto von Guericke Univesität Magdeburg, Germany