• THANK YOU! We raised over $30,000 and will receive the full Penn Medicine's Match!

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  • SAVE THE DATE: 2021 July 23-25

    7th International RASopathies Symposium:

    Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

    Symposium Page Here
  • a 5-minute video

    RASopathies Explained

  • Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak

    For More Information

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • Clinicians around the world

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  • Learn about the individual RASopathy syndromes


Latest News & Events


6/17/2021 RASopathies Overview Webinar for #HACK4RARE Challenge JUNE 17  9-10am PDT / 12-1pm EDT Registration Link Here       […]

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Reading List

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

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RASopathies Network USA News Post

November 20, 2020 CHOP Researchers Reverse Severe Lymphatic Disorder in Patient with Noonan Syndrome by Targeting Genetic Pathway Read the […]

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