• Penn Orphan Disease Research MILLION DOLLAR BIKE RIDE Fundraiser

    It's Not Too Late to Donate

    We will match donations 1:1 (up to a total of $10,000), which will then be matched by the Penn Orphan Disease Center, so your donation is worth 4x to a researcher!

    more here
  • Saturday, June 25, 2016 ~ Peru Vermont

    RAS Adventure Ride

    Information and Registration
  • Clinicians around the world

    Find a Clinician

  • Learn about the individual RASopathy syndromes



    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • SAVE THE DATE - July 28-31, 2017

    5th International RASopathies Symposium

    Chairs: Frank McCormick and Katherine A. Rauen

    Link to Scientific Meetings

Latest News & Events

RASopathies Network UK News Post

6th International Meeting on Rare Disorders of the RAS-MAPK Pathway A workshop preceding the 2016 ESHG meeting, Barcelona Friday, May […]

Read More

RASopathies Network USA News Post

FIRST Houston-area Noonan syndrome Family Conference Saturday, June 4, 2016 Texas Children’s Hospital – Pavilion for Women Click HERE for schedule and registration […]

Read More