• We Raised $53,000 for RASopathies Research at the 2019 Penn Medicine's Million Dollar Bike Ride!

    THANK YOU GREG SCHILL, JOE SKELLY, RODGER MCCURDY AND EMMELINE RENSHAW! (Reed Schill, I hope you're feeling better!)

    link to our MDBR webpage
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • Clinicians around the world

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

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