THANK YOU! We raised over $30,000 and will receive the full Penn Medicine's Match!
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SAVE THE DATE: 2021 July 23-25
7th International RASopathies Symposium:
Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic DiscoverySymposium Page Here
a 5-minute video
Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 OutbreakFor More Information
¿ 1:1,000 ?
Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000
Clinicians around the world
Find a ClinicianHere
Learn about the individual RASopathy syndromesHere
Latest News & Events
6/17/2021 RASopathies Overview Webinar for #HACK4RARE Challenge JUNE 17 9-10am PDT / 12-1pm EDT Registration Link Here […]Read More ›
Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]Read More ›
RASopathies Network USA News Post
November 20, 2020 CHOP Researchers Reverse Severe Lymphatic Disorder in Patient with Noonan Syndrome by Targeting Genetic Pathway Read the […]Read More ›