Home - The RASopathies Network

THANK YOU! We raised over $30,000 and will receive the full Penn Medicine's Match!
. . .

Join Us!
SAVE THE DATE: 2021 July 23-25

7th International RASopathies Symposium:

Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

Symposium Page Here
a 5-minute video

RASopathies Explained
Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak
For More Information
PREVALENCE

¿ 1:1,000 ?

Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000
Clinicians around the world

Find a Clinician
Here
Learn about the individual RASopathy syndromes
Here

Scientific Meetings

6/17/2021 RASopathies Overview Webinar for #HACK4RARE Challenge JUNE 17 9-10am PDT / 12-1pm EDT Registration Link Here […]

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

November 20, 2020 CHOP Researchers Reverse Severe Lymphatic Disorder in Patient with Noonan Syndrome by Targeting Genetic Pathway Read the […]

THANK YOU! We raised over $30,000 and will receive the full Penn Medicine's Match!