• Letter of Interest deadline 9/16/2021

    MDBR Pilot Grant

    Advance RASopathies Research

    Application Instructions

  • Please Look at our Posters and Speakers' Abstracts!

    7th International RASopathies Symposium: Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

    POSTERS PRESENTERS' ABSTRACTS

  • a 5-minute video

    RASopathies Explained

    HERE

  • THANK YOU!

  • Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak

    For More Information

  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • Clinicians around the world

    Find a Clinician

    Here

  • Learn about the individual RASopathy syndromes

    Here

Syndromes

Clinics

Meetings

Scientific Meetings

Research

Publications

Resources

Latest News & Events

Headlines

8/14/2021 Announcing the #HACK4RARE RASopathies Track Winners 3rd prize: Team PsychNetwork  Development of an Interactive Application (Level Up) to track and […]

Read More ›

Reading List

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

Read More ›

RASopathies Network USA News Post

August 2021 We are excited to announce … the Chairs for our next symposium are: Drs. Gregor Andelfinger, Anton Bennett, […]

Read More ›