• Happy 2018!

    Thank You Everyone for Your Support and Interest!

    Our 2017 Year in Review
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • 6th International RASopathies Symposium

    SAVE THE DATE - August 2-5, 2019 in Baltimore, Maryland!

    Stay Tuned Here...
  • Clinicians around the world

    Find a Clinician

  • Learn about the individual RASopathy syndromes



    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

For Families

 Opportunity to participate in one of the first studies looking at the relationship between quality of life, behavior, and social […]

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Reading List

BRaf signaling principles unveiled by large-scale human mutation analysis with a rapid lentivirus-based gene replacement method http://genesdev.cshlp.org/content/31/6/537.abstract?etoc Abstract pid advances […]

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RASopathies Network UK News Post

Neurofibromatosis Type 1 Video ~~~ Noonan Syndrome Association’s FAMILIES FOR FAMILIES DAY Saturday, 13th May, 2017 at the Hilton Birmingham […]

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