• 2018 Million Dollar Bike Ride for RASoapthies Research

    Sign up to RIDE or DONATE to fund a RASopathies Research Grant!

    Sign up or sponsor a bicyclist HERE DONATE HERE - including how to do a 1:4 match

    7th International Meeting on Rare Disorders of the RAS-MAPK Pathway Milan, Italy 15th-16th June 2018

  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • 6th International RASopathies Symposium

    SAVE THE DATE - August 2-5, 2019 in Baltimore, Maryland!

    Stay Tuned Here...
  • Clinicians around the world

    Find a Clinician

  • Learn about the individual RASopathy syndromes



    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

For Families

Max Schill, 9, speaks at the March for Science in Washington, D.C. 4/14/18 click here  and scroll to 2:21:40 into the […]

Read More

Reading List

BRaf signaling principles unveiled by large-scale human mutation analysis with a rapid lentivirus-based gene replacement method http://genesdev.cshlp.org/content/31/6/537.abstract?etoc Abstract pid advances […]

Read More

RASopathies Network UK News Post

Neurofibromatosis Type 1 Video ~~~ Noonan Syndrome Association’s FAMILIES FOR FAMILIES DAY Saturday, 13th May, 2017 at the Hilton Birmingham […]

Read More