• SAVE THE DATE: 2021 July 23-25

    7th International RASopathies Symposium:

    Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

    Symposium Page Here
  • Penn Medicine's Orphan Disease Center Announces MDBR Grant Awardees

    2020 Rare Disease Grant Winners

    RASopathies Research Winner All the Winners
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • Video of this presentation will be available by May 9, 2021

  • View the Webinar Recording

  • Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak

    For More Information

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • Clinicians around the world

    Find a Clinician

  • Learn about the individual RASopathy syndromes



Latest News & Events


4/20/2020 Study participants needed Association of Non-NF-1 RASopathies and Brain/Spinal Cord Cancers Study Flyer ~~~ 4/10/2020 Big Announcement: FDA Approves […]

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Reading List

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

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RASopathies Network USA News Post

November 20, 2020 CHOP Researchers Reverse Severe Lymphatic Disorder in Patient with Noonan Syndrome by Targeting Genetic Pathway Read the […]

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