• THANK YOU RIDERS AND DONORS! 41 riders + 2,139 Collective Miles = $74,830.24 for RASopathies Research!

    Deadline for Letter of Interest to Apply: September 10, 2018 - 8pm EST

    2018 Million Dollar Bike Ride GRANT for RASopathies Research

    Interested Researchers click HERE About the 2018 Ride HERE
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • 6th International RASopathies Symposium

    SAVE THE DATE - August 2-4, 2019 in Baltimore, Maryland!

    Stay Tuned Here...
  • Clinicians around the world

    Find a Clinician

  • Learn about the individual RASopathy syndromes



    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events


8/16/18 University of Pennsylvania’s Orphan Disease Center Annual MILLION DOLLAR BIKE RIDE 2018 Request for Applications released!  Deadline for Letter […]

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Reading List

BRaf signaling principles unveiled by large-scale human mutation analysis with a rapid lentivirus-based gene replacement method http://genesdev.cshlp.org/content/31/6/537.abstract?etoc Abstract pid advances […]

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RASopathies Network UK News Post

Neurofibromatosis Type 1 Video ~~~ Noonan Syndrome Association’s FAMILIES FOR FAMILIES DAY Saturday, 13th May, 2017 at the Hilton Birmingham […]

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