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    Have you used a medication off-label for a RASopathy condition?

    Register for Q&A on how to access and use CURE ID survey
  • What Are the RASopathies?

    Watch HERE
  • Learn about the individual RASopathy syndromes

    Here
  • Clinicians around the world

    Find a Clinician

    Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

Headlines

9/30/2024 RASopathy family picnic in Cincinnati on Saturday October 12, come out and meet new friends. Sponsored by Cincinnati Children’s […]

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Reading List

Parenting Stress Index in Caregivers of Individuals With Noonan Syndrome Lucrezia Perri 1, Germana Viscogliosi 1, Valentina Trevisan 1 2 3, Claudia Brogna 4, Daniela Pia Rosaria Chieffo 5, Ilaria Contaldo 4, Paolo Alfieri 6, Nicolo’ […]

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RASopathies Network USA News Post

August 2024: Save the Date: 9th RASopathies Symposium and 13th Costello Syndrome Family Conference, July 23 – 27, 2025   […]

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