• Thank You for Supporting RASopathies Research on Giving Tuesday

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  • a 5-minute video

    RASopathies Explained

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  • Recording of Webinar

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  • Access the Webinar on Vaccines

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  • Please Look at our Posters and Speakers' Abstracts!

    7th International RASopathies Symposium: Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

    POSTERS PRESENTERS' ABSTRACTS
  • Study Flyer

  • Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak

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  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • Clinicians around the world

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  • Learn about the individual RASopathy syndromes

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Syndromes

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Latest News & Events

Headlines

10/30/2021 RASopathies Natural History Study NOW ENROLLING FLYER PDF to SHARE 8/14/2021 Announcing the #HACK4RARE RASopathies Track Winners 3rd prize: Team […]

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Reading List

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

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RASopathies Network USA News Post

August 2021 We are excited to announce … the Chairs for our next symposium are: Drs. Gregor Andelfinger, Anton Bennett, […]

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