• What Are the RASopathies?

    Watch HERE
  • WEBINAR January 15, 2023 - 9:30amPT / 12:30pmET

    Recording Available Soon

  • 2023 International RASopathies Symposium

    More Information HERE
  • Learn about the individual RASopathy syndromes

  • Clinicians around the world

    Find a Clinician


    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events


7/1/2022 Watch our informative webinars See the full list   4/4/2022 Penn Million Dollar Bike Ride registration is open Donations […]

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Reading List

The seventh international RASopathies symposium: Pathways to a cure—expanding knowledge, enhancing research, and therapeutic discovery by Maria Kontaridis, Amy E. […]

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RASopathies Network USA News Post

August 2021 We are excited to announce … the Chairs for our next symposium are: Drs. Gregor Andelfinger, Anton Bennett, […]

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