LETTER OF INTEREST for MDBR Research Grant
DUE SEPT. 23, 2019
RASNet in collaboration with Penn Medicine's Orphan Disease Center Seeking Letters of Interest for 1-year $59,220 RASopathies Research GrantAPPLICATION INFO on Penn Orphan Disease Center's Site
a 5-minute white-board video
RASopathies ExplainedSee the video HERE
We Raised $53,000 for RASopathies Research at the 2019 Penn Medicine's Million Dollar Bike Ride!
THANK YOU GREG SCHILL, JOE SKELLY, RODGER MCCURDY AND EMMELINE RENSHAW! (Reed Schill, we hope you're feeling better!)link to our MDBR webpage
Clinicians around the world
Find a ClinicianHere
SAVE THE DATE >>2021 July 23-25<< DENVER!2019 Symposium Information Page
Learn about the individual RASopathy syndromes
¿ 1:1,000 ?
Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000