• Please Look at our Posters and Speakers' Abstracts!

    7th International RASopathies Symposium: Pathways to Understanding - Expanding Knowledge, Enhancing Research, and Therapeutic Discovery

    POSTERS PRESENTERS' ABSTRACTS
  • Join Us! More at CTF's Hack4Rare site

  • a 5-minute video

    RASopathies Explained

    HERE

  • THANK YOU!

  • Strategies for Emotional Health and Self-Care for Caregivers During the COVID-19 Outbreak

    For More Information

  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

  • Clinicians around the world

    Find a Clinician

    Here

  • Learn about the individual RASopathy syndromes

    Here

Syndromes

Clinics

Meetings

Scientific Meetings

Research

Publications

Resources

Latest News & Events

Headlines

6/17/2021 RASopathies Overview Webinar for #HACK4RARE Challenge JUNE 17  9-10am PDT / 12-1pm EDT Registration Link Here       […]

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Reading List

Self-Care for Caregivers During COVID-19 Outbreak by Elisabeth Parker, Mom of Ezra RASopathies Network Boardmember [this link will direct you […]

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RASopathies Network USA News Post

November 20, 2020 CHOP Researchers Reverse Severe Lymphatic Disorder in Patient with Noonan Syndrome by Targeting Genetic Pathway Read the […]

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