• a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • May 20, 2017 ~ Participate in Philadelphia or Virtually

    Penn's MILLION DOLLAR BIKE RIDE 2017

    100% of your donation goes to RASopathies Research

    More information HERE
  • SAVE THE DATE - July 28-31, 2017

    5th International RASopathies Symposium

    Chairs: Katherine A. Rauen and Frank McCormick

    More Information Here
  • Clinicians around the world

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    Here
  • PREVALENCE

    ┬┐ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

Reading List

Potential Reuse of Oncology Drugs in the Treatment of Rare Diseases Zhichao Liu,* Hong Fang, William Slikker, and Weida Tong,* […]

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RASopathies Network UK News Post

~international~┬áRare Repurposing Open Call The rare repurposing open call is a collaborative project between Findacure, Cures Within Reach, and Healx. […]

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RASopathies Network USA News Post

NORD Issues Statement as House Committees Review the American Health Care Act Posted by Jennifer Huron Washington, D.C., March 8, […]

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