• a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • 21st Century Cures Act PASSES!

    THANK YOU MAX!

    A Young Boy Grows Up on the #Path2Cures
  • SAVE THE DATE - July 28-31, 2017

    5th International RASopathies Symposium

    Chairs: Katherine A. Rauen and Frank McCormick

    Link to Scientific Meetings
  • Clinicians around the world

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

Reading List

In vivo severity ranking of Ras pathway mutations associated with developmental disorders Granton A. Jindal, Yogesh Goyal, Kei Yamaya, Alan S. Futran, Iason Kountouridis, Courtney […]

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RASopathies Network UK News Post

6th International Meeting on Rare Disorders of the RAS-MAPK Pathway A workshop preceding the 2016 ESHG meeting, Barcelona Friday, May […]

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RASopathies Network USA News Post

Congratulations to Philip Stork, MD Oregon Health & Sciences University Winner of the 2016 Penn Medicine Orphan Disease Center Million Dollar […]

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