• LETTER OF INTEREST for MDBR Research Grant

    DUE SEPT. 23, 2019

    RASNet in collaboration with Penn Medicine's Orphan Disease Center Seeking Letters of Interest for 1-year $59,220 RASopathies Research Grant

    APPLICATION INFO on Penn Orphan Disease Center's Site
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • We Raised $53,000 for RASopathies Research at the 2019 Penn Medicine's Million Dollar Bike Ride!

    THANK YOU GREG SCHILL, JOE SKELLY, RODGER MCCURDY AND EMMELINE RENSHAW! (Reed Schill, we hope you're feeling better!)

    link to our MDBR webpage
  • Clinicians around the world

    Find a Clinician

  • SAVE THE DATE >>2021 July 23-25<< DENVER!

    2019 Symposium Information Page
  • Learn about the individual RASopathy syndromes



    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

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