• 2018 Million Dollar Bike Ride for RASoapthies Research

    THANK YOU RIDERS AND DONORS! 41 riders + 2,139 Collective miles = $66,000 grant for RASopathies Research!

    updates HERE
  • SAVE THE DATE

    7th International Meeting on Rare Disorders of the RAS-MAPK Pathway Milan, Italy 15th-16th June 2018

    FLYER
  • a 5-minute white-board video

    RASopathies Explained

    See the video HERE
  • 6th International RASopathies Symposium

    SAVE THE DATE - August 2-5, 2019 in Baltimore, Maryland!

    Stay Tuned Here...
  • Clinicians around the world

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

For Families

Max Schill, 9, speaks at the March for Science in Washington, D.C. 4/14/18 click here  and scroll to 2:21:40 into the […]

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Reading List

BRaf signaling principles unveiled by large-scale human mutation analysis with a rapid lentivirus-based gene replacement method http://genesdev.cshlp.org/content/31/6/537.abstract?etoc Abstract pid advances […]

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RASopathies Network UK News Post

Neurofibromatosis Type 1 Video ~~~ Noonan Syndrome Association’s FAMILIES FOR FAMILIES DAY Saturday, 13th May, 2017 at the Hilton Birmingham […]

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