Home - The RASopathies Network

LETTER OF INTEREST for MDBR Research Grant

DUE SEPT. 23, 2019

RASNet in collaboration with Penn Medicine's Orphan Disease Center Seeking Letters of Interest for 1-year $59,220 RASopathies Research Grant

APPLICATION INFO on Penn Orphan Disease Center's Site
a 5-minute white-board video

RASopathies Explained
See the video HERE
We Raised $53,000 for RASopathies Research at the 2019 Penn Medicine's Million Dollar Bike Ride!

THANK YOU GREG SCHILL, JOE SKELLY, RODGER MCCURDY AND EMMELINE RENSHAW! (Reed Schill, we hope you're feeling better!)

link to our MDBR webpage
Clinicians around the world

Find a Clinician
Here
SAVE THE DATE >>2021 July 23-25<< DENVER!
2019 Symposium Information Page
Learn about the individual RASopathy syndromes

THE SYNDROMES
Here
PREVALENCE

¿ 1:1,000 ?

Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Scientific Meetings

DUE SEPT. 23, 2019