These registration rates are for those who also book a room at this hotel. In order for the symposium to stay solvent, we need you to stay at the Renaissance Orlando at SeaWorld at the symposium rate of $125+tax per night. If you do not stay at the Renaissance Orlando at SeaWorld, $250 will be added to your registration fee. Local registrants are exempt.
This year, the Monica Grund* Memorial Fund is providing scholarships to cover the family registration fee. Scholarships will be available on a first-come, first-served basis.
To apply for a scholarship click HERE.
If you are happy to pay for the registration fee so that another family in need may have the opportunity, please continue with the following registration form below.
If you have any questions, please contact Lisa Schill at firstname.lastname@example.org
*Monica Grund was a valued RASopathies Network Board Member who passed away in 2016. The fund is made from donations in her memory.
Dear RASopathies Affected Person/Family Member,
We welcome you to register for the symposum that starts Friday Night with a Reception/Poster Session, and ends Sunday before lunch.
We need you to register even if you are only attending the free sessions so we know how
many people to expect, and accommodate you better!
The symposium is a scientific meeting, and the goal is to speed up understanding and
generate new insights and ideas among clinicians and researchers, so most of the
conversations will be highly technical.
If you are coming with another adult(s) and children, please choose which adult will
register the number of children we should be expecting.
Note: there is no childcare provided by this symposium. If you need childcare, please
ask the hotel concierge for assistance.
If you are coming with another adult(s) and children, please choose which adult will register the number of children we should be expecting. Also, to help defray the cost of the meals, we ask that anyone age 13 or older also register and pay for the symposium if your plan is for the child to eat the meals at the symposium.
RASopathiesNet will contact you to discuss adding the $250 if you do not stay at the Renaissance Orlando at SeaWorld, unless you are within a reasonable daily driving distance to the symposium.
Support a worthwhile cause
is a partnership between
RASopathies Network USA and
RASopathies Network UK