• Help us with our Texting Fundraiser

    Between October 16-31, 2014

    text "RARE" to 85944 to donate $10

    Your Tools Here (see #2)
  • SAVE THE DATE

    4th International RASopathies Symposium

    July 17-19, 2014, Doubletree at Seattle Airport (SeaTac)

    More HERE
  • Clinicians around the world

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    More Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

RASopathies Network UK News Post

5th International Meeting on Rare Disorders of the RAS-MAPK Pathway A workshop preceding the 2014 ESHG meeting, Milan May 30th, 2014 […]

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RASopathies Network USA News Post

Katherine Rauen named 2014 Rare Champion of Hope honoree at 2014 Global Genes Summit (UC Davis Health System Newsletter, SACRAMENTO, […]

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