• Photo Credit: Evan Robold Photography

    Million Dollar Bike Ride

    May 3, 2014 ~ Register to ride or sponsor our team!

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  • Clinicians in the United States

    Find a Clinician

    Here
  • Learn about the individual RASopathy syndromes

    THE SYNDROMES

    More Here
  • PREVALENCE

    ¿ 1:1,000 ?

    Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000

Latest News & Events

Million Dollar Bike Ride

The Million Dollar Bike Ride: Help Us Raise Money for RASopathies Research   Come join us! The Penn Medicine Center […]

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RASopathies Network UK News Post

Steph and Daisy Nimmo (CS) are featured in an article for Rare Disease Day (28 February).  Follow this link to […]

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RASopathies Network USA News Post

Steph Nimmo’s story about Daisy (with Costello syndrome) is featured on Global Genes, “How Our Daughter Benefits When Rare Disease […]

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